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Zellweger Baby Support Network National Organization for Rare Disorders Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database.
More about the Zellweger Baby Support Network, with a message board to communicate with other parents and more stories of other children affected by Zellweger syndrome and other peroxisomal disorders. Manuela Martinez Foundation for Children with Metabolic Diseases has been created for the research, diagnosis and treatment of children with peroxisomal disorders and other lipid diseases. Lamplight Barcelona Properties Contact Lorena Nelson for furnished apartments within walking distance to Dr. Martinez' clinic. Telephone: 34-93-446-1955 Mobile: 34-652-165-991 Kennedy Krieger Institute is an internationally recognized facility located in Baltimore, Maryland dedicated to improving the lives of children and adolescents with pediatric developmental disabilities through patient care, special education, research, and professional training. National Institute of Health article on the Zellweger syndrome spectrum written by: Steven J Steinberg, PhD Gerald V Raymond, MD Nancy E Braverman, MS, MD Ann B Moser, BA Hugo W Moser, MD Have a question about Zellweger Syndrome or Peroxisomal disorders? Find answers here:
Non-profit organizational ID: NS012973 Tax ID: 20-3695622 Last updated: June 1, 2007 |
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