Zellweger Baby Support Network

The Zellweger Baby Support Network was started by a group of parents whose lives have been effected in some way by a rare disorder.  Our gift, in honor of our children, was to start this site, so we can help families and to raise awareness of these rare disorders. If your child has been diagnosed with Zellweger syndrome, a Peroxisomal disorder or another rare disorder, we want to help you.  These disorders are rare, but you are not alone. 

We will help you learn more about the disorder you are going to be dealing with; we will provide emotional support, and help you to create a journal site for your child so that family and friends can kept up to date on your child. We will pray with you and for you as you journey through life with your special angel.

We know this is a hard time for you; you want answers, information and comfort.  We want to help!  So do the members of this site, whether they have been touched personally by a ZS child or just want to help those who have ZS children.  We are a safe place for you to let it all out and help others in their journey as well.  Please look through all the areas of the site and feel free to post to tell us a little about yourself and your family.

God bless you every day!!

Non-profit organizational ID: NS012973

Tax ID: 20-3695622

Last updated: June 1, 2007